The Prostate Cancer Outcomes Registry – Victoria (PCOR-Vic) at Monash University’s School of Public Health and Preventive Medicine, has been working with survivors of prostate cancer to co-design a new online support portal for Victorian men living with the disease.
The BroSupPORT portal allows men to compare their prostate cancer outcomes and experiences with other men who have had the same treatment and who are of the same age and risk profile.
BroSupPORT uses a Patient Reported Outcomes (PROs) comparator tool and data from approximately 11,000 men in Victoria, collected 12 months after their treatment.
The portal includes information on post-treatment side effects like urinary incontinence, sexual and bowel function, that can have a big impact on a man’s quality of life.
Men in Victoria can access BroSupPORT after they complete a routine follow-up PROs survey, to see how their results compare with other men like them.
“This is the first time that PROs data is being fed back directly to the men who contribute to it”, said Professor Jeremy Millar, clinical lead of PCOR-Vic.
Currently in pilot phase, the BroSupPORT initiative is sponsored by Victorian Agency for Health Information (VAHI) in collaboration with Movember and Alfred Health.
Evaluation of the three-month pilot will help to inform future improvements.
BroSupPORT also links men to True North, a website developed by Movember to provide men with the information, tools and resources to support them on their prostate cancer journey.
For more information on BroSupPORT, contact firstname.lastname@example.org Project Officer, BroSupPORT, Prostate Cancer Outcomes Registry – Victoria.