Collaborative Platform 1: Using data as a foundation for high-quality cancer care

Collaborative Platform 1: Using data as a foundation for high-quality cancer care 2019-07-10T16:30:17+00:00

A pilot in real-time Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs)

March 2019 – September 2020

Real-time collection of PROMs and PREMs assists clinicians to identify patient’s symptoms or concerns and facilitates appropriate management. As well as improving care and patient satisfaction, the data collected can inform health service planning and quality improvements for future patients.

Two complementary pilot projects will serve as the vital foundation work for a broader implementation of PROMs and PREMs data collection across Monash Partners hospitals and ultimately sites beyond: Part A is a pilot study of real-time registry-based PROMs and PREMs in pancreatic cancer and Part B is a pilot of real-time clinically-based PROMs and PREMs.

Part A: Real-time registry-based PROMs and PREMs in pancreatic cancer

This pilot project will partner with clinicians from MPCCC health services, Monash, Alfred, Eastern and Peninsula Health as well as patients, to develop a pancreatic cancer-specific, patient questionnaire, to measure the severity and impact of common symptoms and problems. The questionnaire will be completed online by patients, at regular intervals, will provide real-time feedback to treating clinicians so that medical or supportive care interventions can be put in place. Data will be integrated into an existing clinical quality registry for pancreatic cancer, the Upper Gastro-intestinal Clinical Registry (UGICR), as part of measuring quality of care.


It is anticipated the pilot will help people living with pancreatic cancer, particularly those who are not on active treatment plans and/or not in regular contact with their health service, to feel connected and get the care they need, through the option of real-time feedback to clinicians. Both the data collected and the electronic method of collection are novel in cancer patients in Australia, and this pilot will act as a proof-of-concept for other projects.

Patient-reported data collected within the UGICR will provide valuable information about the relationship between quality of care and patient outcomes. It will be used by participating hospitals to inform service enhancements and improve quality of care for future patients.

See here for details of the Part A Project Team.

For more information about Part A, contact Ms Julie Bonin at or (03) 9905 6927

Part B: Real-time clinically-based PROMs and PREMs

This feasibility study will pilot a model for the real-time clinical collection of PROMS and PREMS with oncology patients at Monash Health. Participating patients will be surveyed immediately prior to a consultation with their treating clinician,  so that their medical and supportive care needs can be appropriately addressed, as they arise.

Based on evaluation and learnings from the limited pilot, and with multi-disciplinary input from each of MPCCC’s partners including Alfred, Cabrini, Eastern, Monash and Peninsula Health, the project team will deliver a cross-MPCCC implementation plan for the real-time clinical collection of PROMS and PREMS.


This project will pave the way to introduce real-time clinical-collection of PROMs and PREMs across MPCCC partner sites. The longer-term benefits of successful implementation of this project and subsequent roll-out across MPCCC sites are numerous, including better patient management and quality of life outcomes, improved clinical efficiencies and workflows, and reported patient outcome data to inform service level evaluations and further research efforts.

For more information about Part B, contact Dr Olivia Cook at or (03) 9905 3676.

See here for details of the Part B Project Team.