A pilot in real-time PROMs and PREMs

A pilot in real-time PROMs and PREMs 2019-10-21T11:00:53+00:00

MPCCC’s pilot in real-time Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs) fits within Collaborative Platform 1: ‘Using data as a foundation for high-quality cancer care’ in the MPCCC 2017-2021 Strategic Plan.

March 2019 – September 2020

Pilot overview

Collection of patient reported outcome measures (PROMs) and patient reported experience measures (PREMs) assists clinicians with identifying patient’s symptoms or concerns and facilitates appropriate management. In addition to improving care and patient satisfaction, the data collected can inform health service planning and quality improvements for future patients.

Two complementary pilot projects will serve as a foundation for a broader implementation of PROMs and PREMs data collection across MPCCC partners and, in future, sites outside our region.


Part A: Real-time registry-based PROMs and PREMs in pancreatic cancer

Partnering with patients and clinicians from across MPCCC health services, this pilot will develop as electronic patient questionnaire that is specific to patients with pancreatic cancer. It will measure the severity and impact of common symptoms and problems, and will be completed by patients at regular intervals. The questionnaire will provide real-time feedback to treating clinicians so that medical or supportive care interventions can be put in place. Data will be integrated into an existing clinical quality registry for pancreatic cancer, the Upper Gastro-intestinal Clinical Registry (UGICR), as part of measuring quality of care.

Expected impact of Part A

It is anticipated the pilot will help people living with pancreatic cancer, particularly those who are not on active treatment plans and/or not in regular contact with their health service, to feel connected and get the care they need, through the option of real-time feedback to clinicians. Both the data collected and the electronic method of collection are novel in cancer patients in Australia, and this pilot will act as a proof-of-concept for other projects.

Patient-reported data collected within the UGICR will provide valuable information about the relationship between quality of care and patient outcomes. It will be used by participating hospitals to inform service enhancements and improve quality of care for future patients.

See here for details of the Part A Project Team.

For more information about Part A, contact Ms Julie Bonin at julie.bonin@monash.edu or (03) 9905 6927


Part B: Real-time clinically-based PROMs and PREMs

This feasibility study will pilot a model for the real-time clinical collection of PROMS and PREMS with oncology patients at Monash Health. Participating patients will be surveyed immediately prior to a consultation with their treating clinician, so their medical and supportive care needs can be appropriately addressed as they arise.

Based on evaluation and learnings from the limited pilot, and with multi-disciplinary input from each of MPCCC’s partners including Alfred, Cabrini, Eastern Health, Monash Health and Peninsula Health, the project team will deliver a cross-MPCCC implementation plan for the real-time clinical collection of PROMS and PREMS.

Expected impact of Part B

This project will pave the way to introduce real-time clinical-collection of PROMs and PREMs across MPCCC partner sites. The longer-term benefits of successful implementation of this project and subsequent roll-out across MPCCC sites are numerous, including better patient management and quality of life outcomes, improved clinical efficiencies and workflows, and reported patient outcome data to inform service level evaluations and further research efforts.

See here for details of the Part B Project Team.

For more information about Part B, contact Dr Olivia Cook at olivia.cook@monash.edu or (03) 9905 3676.


MPCCC acknowledges the support of the Victorian State Government.