A pilot in real-time PROMs and PREMs

A pilot in real-time PROMs and PREMs 2020-02-04T12:23:19+00:00

MPCCC is piloting two projects that collect patient reported outcome measures (PROMs) and patient reported experience measures (PREMs) in real-time through targeted patient questionnaires. Real-time collection of PROMs and PREMs helps clinicians to identify symptoms or concerns about a wide range of issues during and after cancer treatment, and enables them to manage these in a timely and appropriate way. In addition to improving care and patient satisfaction, the data collected can inform health service planning and quality improvements for future patients.

The two complementary MPCCC pilot projects began in March 2019 and will serve as a foundation for a broader implementation of PROMs and PREMs data collection across MPCCC partners and, in future, sites outside our region.


Registry-based pilot study of real-time PROMs and PREMs in patients with pancreatic cancer

Patients with pancreatic cancer will receive an electronic questionnaire at 3-month intervals, to be completed in between clinic visits, via text message and email communications. The questionnaire will encourage patients to reflect on how well their physical, emotional, social and informational needs are being met during treatment, recognising any areas in which they need additional support. Data collected through the PROMs and PREMs questionnaires will be integrated into an existing clinical quality registry for pancreatic cancer, the Upper Gastro-intestinal Clinical Registry (UGICR), which will help to inform future research and clinical care priorities in pancreatic cancer.

This pilot study will involve clinicians and pancreatic cancer patients from across four MPCCC health services: Monash Health, Alfred Health, Eastern Health and Peninsula Health.

Project impact

This pilot aims to help people living with pancreatic cancer, particularly those who are not on active treatment plans and/or not in regular contact with their health service, to feel connected and get the care they need, through the option of real-time feedback to clinicians.

Both the data collected and the electronic method of collection are novel in cancer patients in Australia, and this pilot will act as a proof-of-concept for other projects. Patient-reported data collected within the UGICR will provide valuable information about the relationship between quality of care and patient outcomes. It will be used by participating hospitals to inform service enhancements and improve quality of care for future patients.

See here for details of the project team and steering committee. For more information, contact Jennifer Holland on jennifer.holland@monash.edu or (03) 9903 0323.


Real-time PROMs and PREMs in a clinical setting

Cancer patients will complete a PROMs and PREMs questionnaire immediately prior to their consultation with a treating oncologist, on an iPad in the waiting room.  The data will be delivered to their doctor in real-time, so any issues identified can be immediately addressed, including supportive care needs. The questionnaire aims to highlight how important holistic well-being is during cancer treatment, and to give patients the confidence to discuss a wide range of concerns with their doctors, not only traditionally ‘clinical’ topics. Based on evaluation of a feasibility study at Monash Health, the project team will deliver a cross-MPCCC implementation plan for the real-time clinical collection of PROMs and PREMs.

Project impact

This pilot will pave the way for real-time clinical-collection of PROMs and PREMs across MPCCC partner sites. The long-term benefits of successful implementation of this project and subsequent roll-out across MPCCC sites are numerous, including better patient management and quality of life outcomes, improved clinical efficiencies and workflows, and reported patient outcome data to inform service level evaluations and further research efforts.

See here for details of the project team and steering committee. For more information, contact Alastair Kwok on alastair.kwok@monash.edu or (03) 8572 2390.